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Clinical Cases and Reviews in Epilepsy

The Epimena Study: digital narrative methodologies for epilepsy treatment pathway personalization

Clinical Case, 65 - 68
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Narrative-based medicine is a clinical methodology of recognized validity and recently introduced in the scientific panorama. The study called EPIMENA aims to apply narrative medicine in clinical epileptological practice, through the platform DNM-Digital Narrative Medicine. The carrying out of the study is based on the acquisition of narrative elements of the patient that the referring doctor uses, integrating them with clinical data, to share and customize the diagnostic-therapeutic pathway of patients suffering from epilepsy. At the "Policlinico Umberto I" in Rome, 57% of the invited patients (37 out of a total of 65) decided to formalize their registration in the digital diary and 46% responded to one or more narrative prompts generating the story of their experience, which was then analyzed according to a methodology that made it possible to detect the degree of acceptance of the disease and the perception of care. Patients' overall judgment on the project was also positive. Through it, they were able to better reflect on themselves, bringing out and communicating information to the physician that otherwise would not have been taken into consideration. The majority of patients involved believe that the digital diary should be included in the regular clinical practice or in any case would like to continue using it. The data collected confirmed that the time spent on conversation, even virtual, is in effect a cure time and that the narrative analysis of the patients' stories contributed objectively to a clinical practice of greater quality and effectiveness, perceived later by the patients themselves as more attentive to their own person.

Vol. 3 (No. 1-4) 2018 January - December

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  2. SCN8A-related phenotypes: an overview of the literature
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  5. Epilepsy with seizures induced by movement: a rare reflex epilepsy
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  6. Temporal lobe epilepsy, corticobasal syndrome and mild cognitive impairment due to amyloid pathology
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  7. Status epilepticus and autoimmune pancytopenia: the numerous targets of autoimmunity
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  8. CNTN2 gene: probable cause of Epileptic Encephalopathy Lennox-Gastaut like phenotype
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  9. Epilepsy with refractory multiple seizure types in chromosome 5q14.3 deletion syndrome
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  11. Ethosuximide-induced Lupus and discontinuation of carbamazepine treatment when Lupus is suspected: two paediatric cases
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  15. A prospective case-control study on risk factors for SUDEP
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  16. Antiepileptic Drugs Commission: where we are and where do we want to go
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  19. Study Group Cannabis and Epilepsy
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  20. Transition and epilepsy
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